Books in the Health Society And Policy series

Presents a comprehensive account of sickle cell disease (SCD) and its affect on low-income families. This book examines how low-income African American mothers with children suffering from this hereditary, incurable, and chronically painful disease, react to the diagnosis and manage their family's health care.

The latest War on Drugs in the United States targeted cocaine and later crack as an "epidemic" sweeping the nation with tragic and irreversible effects. This title presents a study of heavy cocaine users in an effort to understand how they got started, their uses of cocaine, and the "natural" progression of use and abuse.

Describes how America's disabled mobilized to effect changes in public policy, not once but twice, and it suggests that the struggle is not yet over. This book surveys the effects and disappointments associated with the Americans with Disabilities Act, passed in 1990, in the context of the movement to secure full civil rights for disabled people.

Hydropathy advocates the reformation of such personal habits as diet, exercise, dress, and way of life. This book investigates the theories, practices, medical and social philosophies, institutions, and the most prominent proponents of the water-cure movement and studies them in relation to the diverse reform networks of the nineteenth century.

Examines the experiences of six families in which children with disabilities are full participants in family life in order to understand how people who have been labeled disabled might become full participants in the other areas of society as well.

Presents new vision of adolescent sexuality shaped by a variety of social factors: race and ethnicity, gender, sexual identity, physical ability, and cultural messages propagated in films, books, and within families. This collection of essays considers a range of cultural influences that form a teenager's sexual identity.

During the Rubella Syndrome epidemic of the 1960s, many children were born deaf, blind, and mentally disabled. David Goode has devoted his life and career to understanding such people's world, a world without words. This book is the result of his studies of two children with congenital deaf-blindness and mental retardation.

This collection of original essays discusses the increasingly rapid spread of AIDS among women, considering the varying experiences and responses of women of color, lesbians, and economically impoverished women. The essays range widely from policy assessments to case studies, focusing on women as sufferers, caretakers, policy activists, community organizers, and educators.

When Carolyn Ellis, a graduate student, and Gene Weinstein, her Professor, fell in love, he was experiencing the first stages of emphysema. As he became disabled and immobile, these two partners fought to maintain their love and to live a meaningful life. This memoir is about what it means to be involved, and in love, with someone chronically ill.

A memoir of the author's experience as a profoundly deaf infant who became an expert lipreader, and who never learned sign language or met another deaf person until her mid-thirties. It follows her story as she made it through college, to become a corporate litigator.

An inspirational and telling story about a family's struggle to get equal educational opportunity for their deaf daughter