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An inspiring story of doctors who changed the health care of an African nationDr. Dilan Ellegala arrives in Tanzania, shocked to find the entire country has just three brain surgeons for its population of forty-two million. Haydom Lutheran Hospital lacks even the most basic surgical tools, not even a saw to open a patient's skull. Here, people with head injuries or brain tumors heal on their own or die. When confronted with a villager suffering from a severe head trauma, Dilan buys a tree saw from a farmer, sterilizes it, and then uses it to save the man's life.Yet Dilan realizes that there are far too many neurosurgery patients for one person to save, and of course he will soon be leaving Tanzania. He needs to teach someone his skills. He identifies a potential student in Emmanuel Mayegga, a stubborn assistant medical officer who grew up in a mud hut. Though Mayegga has no medical degree, Dilan sees that Mayegga has the dexterity, intelligence, and determination to do brain surgery. Over six months, he teaches Mayegga how to remove tumors and treat hydrocephalus. And then, perhaps more important, Dilan teaches Mayegga how to pass on his newfound skills. Mayegga teaches a second Tanzanian, who teaches a third. It's a case of teach-a-man-to-fish meets brain surgery.As he guides these Tanzanians to do things they never thought possible, Dilan challenges the Western medical establishment to do more than send vacationing doctors on short-term medical missions. He discovers solutions that could transform health care for two billion people across the world.A Surgeon in the Village is the incredible and riveting account of one man's push to ';train-forward'to change our approach to aid and medical training before more lives are needlessly lost. His story is a testament to the transformational power of teaching and the ever-present potential for change. As many as seventeen million people die every year because of a shortage of surgeons, more than die from AIDS, malaria, and tuberculosis combined. Dilan Ellegala and other visionaries are boldly proposing ways of saving lives.
The unexpected story of how genetic testing is affecting race in AmericaWe know DNA is a master key that unlocks medical and forensic secrets, but its genealogical life is both revelatory and endlessly fascinating. Tracing genealogy is now the second-most popular hobby amongst Americans, as well as the second-most visited online category. This billion-dollar industry has spawned popular television shows, websites, and Internet communities, and a booming heritage tourism circuit.The tsunami of interest in genetic ancestry tracing from the African American community has been especially overwhelming. In The Social Life of DNA, Alondra Nelson takes us on an unprecedented journey into how the double helix has wound its way into the heart of the most urgent contemporary social issues around race.For over a decade, Nelson has deeply studied this phenomenon. Artfully weaving together keenly observed interactions with root-seekers alongside illuminating historical details and revealing personal narrative, she shows that genetic genealogy is a new tool for addressing old and enduring issues. In The Social Life of DNA, she explains how these cutting-edge DNA-based techniques are being used in myriad ways, including grappling with the unfinished business of slavery: to foster reconciliation, to establish ties with African ancestral homelands, to rethink and sometimes alter citizenship, and to make legal claims for slavery reparations specifically based on ancestry.Nelson incisively shows that DNA is a portal to the past that yields insight for the present and future, shining a light on social traumas and historical injustices that still resonate today. Science can be a crucial ally to activism to spur social change and transform twenty-first-century racial politics. But Nelson warns her readers to be discerning: for the social repair we seek can't be found in even the most sophisticated science. Engrossing and highly original, The Social Life of DNA is a must-read for anyone interested in race, science, history and how our reckoning with the past may help us to chart a more just course for tomorrow.
Essays on Latinx and Caribbean identity and on globalization by renowned women writers, including Julia Alvarez, Edwidge Danticat, and Jamaica KincaidWomen Writing Resistance: Essays on Latin America and the Caribbean gathers the voices of sixteen acclaimed writer-activists for a one-of-a-kind collection. Through poetry and essays, writers from the Anglophone, Hispanic, and Francophone Caribbean, including Puertorriqueas and Cubanas, grapple with their hybrid American political identities. Gloria Anzalda, the founder of Chicana queer theory; Rigoberta Mench, the first Indigenous person to win a Nobel Peace Prize; and Michelle Cliff, a searing and poignant chronicler of colonialism and racism, among many others, highlight how women can collaborate across class, race, and nationality to lead a new wave of resistance against neoliberalism, patriarchy, state terrorism, and white supremacy.
A new edition of Childress's hilarious, uncompromising novel about African American domestic workers, featuring a foreword by Roxane GayFirst published in Paul Robeson's newspaper, Freedom, and composed of a series of conversations between Mildred, a black domestic, and her friend Marge, Like One of the Family is a wry, incisive portrait of working women in Harlem in the 1950's. Rippling with satire and humor, Mildred's outspoken accounts vividly capture her white employers' complacency and condescensionand their startled reactions to a maid who speaks her mind and refuses to exchange dignity for pay.Upon publication the book sparked a critique of working conditions, laying the groundwork for the contemporary domestic worker movement. Although she was critically praised, Childress's uncompromising politics and unflinching depictions of racism, classism, and sexism relegated her to the fringe of American literature. Like One of the Family has been long overlooked, but this new edition, featuring a foreword by best-selling author Roxane Gay, will introduce Childress to a new generation.
How the hidden trade in our sensitive medical information became a multibillion-dollar business, but has done little to improve our health-care outcomesHidden to consumers, patient medical data has become a multibillion-dollar worldwide trade industry between our health-care providers, drug companies, and a complex web of middlemen. This great medical-data bazaar sells copies of the prescription you recently filled, your hospital records, insurance claims, blood-test results, and more, stripped of your name but possibly with identifiers such as year of birth, gender, and doctor. As computing grows ever more sophisticated, patient dossiers become increasingly vulnerable to reidentification and the possibility of being targeted by identity thieves or hackers.Paradoxically, comprehensive electronic files for patient treatmentthe reason medical data exists in the first placeremain an elusive goal. Even today, patients or their doctors rarely have easy access to comprehensive records that could improve care. In the evolution of medical data, the instinct for profit has outstripped patient needs. This book tells the human, behind-the-scenes story of how such a system evolved internationally.It begins with New York advertising man Ludwig Wolfgang Frohlich, who founded IMS Health, the world's dominant health-data miner, in the 1950s. IMS Health now gathers patient medical data from more than 45 billion transactions annually from 780,000 data feeds in more than 100 countries. Our Bodies, Our Data uncovers some of Frohlich's hidden past and follows the story of what happened in the following decades. This is both a story about medicine and medical practice, and about big business and maximizing profits, and the places these meet, places most patients would like to believe are off-limits.Our Bodies, Our Data seeks to spark debate on how we can best balance the promise big data offers to advance medicine and improve lives while preserving the rights and interests of every patient. We, the public, deserve a say in this discussion. After all, it's our data.
Following the death of her father, journalist and hospice volunteer Ann Neumann sets out to examine what it means to die well in the United States.When Ann Neumann's father was diagnosed with non-Hodgkin's lymphoma, she left her job and moved back to her hometown of Lancaster, Pennsylvania. She became his full-time caregivercooking, cleaning, and administering medications. When her father died, she was undone by the experience, by grief and the visceral quality of dying. Neumann struggled to put her life back in order and found herself haunted by a question: Was her father's death a good death?The way we talk about dying and the way we actually die are two very different things, she discovered, and many of us are shielded from what death actually looks like. To gain a better understanding, Neumann became a hospice volunteer and set out to discover what a good death is today. She attended conferences, academic lectures, and grief sessions in church basements. She went to Montana to talk with the attorney who successfully argued for the legalization of aid in dying, and to Scranton, Pennsylvania, to listen to ';pro-life' groups who believe the removal of feeding tubes from some patients is tantamount to murder. Above all, she listened to the stories of those who were close to death.What Neumann found is that death in contemporary America is much more complicated than we think. Medical technologies and increased life expectancies have changed the very definition of medical death. And although death is our common fate, it is also a divisive issue that we all experience differently. What constitutes a good death is unique to each of us, depending on our age, race, economic status, culture, and beliefs. What's more, differing concepts of choice, autonomy, and consent make death a contested landscape, governed by social, medical, legal, and religious systems.In these pages, Neumann brings us intimate portraits of the nurses, patients, bishops, bioethicists, and activists who are shaping the way we die. The Good Death presents a fearless examination of how we approach death, and how those of us close to dying loved ones live in death's wake.
A moving and surprisingly funny memoir about finding the right balance between anger and compassion';Why aren't you angry?' people often asked Martin Moran after he told his story of how he came to forgive the man who sexually abused him as a boy. At first, the question pissed him off. Then, it began to haunt him. Why didn't he have more anger? Why had he never sought redress for the crime committed against him? Was his fury hidden, buried? Was he not man enough? Here he was, an adult in mid-life, with an established acting career, a husband. A life. And yet the question of rage began to obsess him.As the narrative jumps from dream to memory to theory, from Colorado to New York to Johannesburg, Moran takes us along on his quest to understand the role of rage in our lives. Translating for an asylum seeker and survivor of torture, he wonders how the man is not consumed with the wrong done him, only to shortly thereafter find himself in a wild confrontation with his fuming stepmother at his father's funeral. He admires a pedestrian's furious put-down of a careless driver, and then, observing with a group of sex therapists at an S&M dungeon, he finds himself unexpectedly moved by the intimacy of the interchanges. Hiking the Rockies with his troubled younger brother, he's confronted by the anger and the love that seem to exist simultaneously and in equal measure between them.With each encounter, we move more deeply into the human complexities at the heart of this book: into how we wrong and are wronged, how we seek redress but also forgiveness, how we yearn to mend what we think broken in us and liberate ourselves from what's past. It is in this landscape of old wounds and complicated loves that Moran shows us how rage may meet compassion and our traumas unexpectedly open us to the humanity of others.
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